National Autism Center at May Institute applauds state leadership for highlighting and supporting the complex needs of this population
RANDOLPH, Mass., March 14, 2025 /PRNewswire/ — In a significant step towards increasing awareness and support for individuals with profound autism, the Commonwealth of Massachusetts is officially recognizing Monday, March 17, 2025, as Profound Autism Day established with an executive proclamation from Governor Maura Healey. Additionally, the Massachusetts House of Representatives and the Massachusetts Senate have both issued official citations recognizing this first annual Profound Autism Day in Massachusetts.
The effort and advocacy for this formal designation was spearheaded nationally by the Profound Autism Alliance with the lead taken in Massachusetts by the National Autism Center at May Institute, headquartered in Randolph.
Over the past two years, the Profound Autism Alliance has made great strides towards improving understanding of the lives of people with profound autism and their caregivers. However, true progress can be achieved when both policymakers and the public recognize what profound autism means and who it represents. The announcement of Massachusetts’ recognition marks a significant step towards this progress.
“Profound autism is a term used to describe autistic people who require lifetime, 24/7 care,” said Lauren C. Solotar, Ph.D., ABPP, President and CEO of May Institute, and CEO of the National Autism Center at May Institute. “According to the CDC, 26.78%, or one in four autistic children in the United States, meet the criteria for profound autism.”
Research indicates that individuals with profound autism are more likely to be female, from racial and ethnic minority backgrounds, from lower socioeconomic status, or born prematurely. Many also experience additional challenges such as self-injurious behaviors, seizure disorders, and lower adaptive functioning.
“Recognition of profound autism is critical for these individuals, and we are so proud to live in a state that has taken the time to very publicly do just that,” continued Dr. Solotar. “At the National Autism Center and May Institute, we are committed to disseminating meaningful, evidence-based information to enhance understanding and to provide the highest quality services to this population.”
“Use of the term profound autism is about clarity, not competition,” said Judith Ursitti, Cofounder and President of the Profound Autism Alliance. “As a mom of a son with profound autism, I know first-hand the consistent, unique, devastating, and often unseen challenges that both individuals with profound autism and their caregivers experience.”
Despite their significant needs, people with profound autism and their caregivers often live in isolation, excluded from vital research and support programs. Recognizing their unique challenges is critical to building a more inclusive and supportive society.
Read the full proclamation signed by Governor Healey.
National Autism Center at May Institute
The National Autism Center is May Institute’s Center for the Promotion of Evidence-based Practice. It is a nonprofit organization dedicated to disseminating evidence-based information about the treatment of autism spectrum disorder (ASD), promoting best practices, and offering comprehensive and reliable resources for families, practitioners, and communities.
Profound Autism Alliance
The Profound Autism Alliance is a network of partners focused on inclusive research and legislative changes to improve the lives of individuals with profound autism. The Alliance’s mission is to improve the health and connection of these individuals through inclusive research and focused advocacy that will result in meaningful services and supports.
SOURCE National Autism Center at May Institute
